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My Life With RE
Scientific Advisory Board Members: Chris Cotsapas, Yale University; Helen Cross, Great Ormond Street Hospital, Gary Mathern UCLA Click on the highlighted link to see our story which made the cover of...
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RE Children’s 3rd Scientific Research Meeting
Meeting participants Just got back from Los Angeles where I participated in our 3rd research symposium devoted to rasmussen’s encephalitis. The RE Children’s Project sponsored the event and it was a...
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Lifting For Grace VI
On March 13th and 14th the Blue Wave Football Team will compete against rival Brien McMahon in a lift-a-thon with a twist. The teams will lift weights, lots of them, but more importantly, they will...
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Westwood UCLA 2014 Conference Notes
I am delighted to report that the scientific notes from the latest research conference held two months ago on the campus of UCLA are now available. These notes represent the latest science and...
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Recent letter from our Research Coordinator, Mr. Thabiso Chirwa
I hope you are doing well. I wanted to follow-up on a letter I sent you to let you know about some of the progress we are making with the RE Children’s Project (www.rechildrens.org) in the ongoing...
View ArticleNeed Funds
We are in the early stages of looking at post high school alternatives and it is a real challenge to navigate the labyrinth of schools available to young adults with learning and physical disabilities....
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I continue to be contacted by parents from every corner of the world desperately seeking help for their children. Most recently the e-mails have come from Israel, Rumania, and in the States from...
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Lifting For Grace
On March 13th, the annual Lifting For Grace fundraising event will take place in our home town at Darien High School. The event is focused on raising awareness for Rasmussen’s encephalitis as well...
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In Memoriam: Pouneh Bahri
A year ago a terrible tragedy happened to a very special person, Pouneh Bahri. After enduring the hardship and tragedy of Rasmussen’s encephalitis, and then striving to find her own way in life, she...
View ArticleTouching base
I heard from one of my research friends that there is promising news coming out of France about TNA alpha inhibitors and their success in stopping RE. TNA alpha inhibitors are a class of drugs that...
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